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Elijah's Hope is a non-profit organisation aimed at bringing together families affected by the rare disease, Apert Syndrome.

This site will collate information about Apert syndrome and hopefully, as time goes on, become a repository of knowledge for both families and practitioners.

If you would like to be able to view our current medical articles that we have already gathered, you will need to join, which is FREE. It's a simple sign up that will give you full access to the site. You can do so here.

On the Elijah's Hope site...

kaddy-el-6homeIf you're affected by Apert syndrome in your family, why not send in your story? Sharing stories can help other people who may be feeling isolated.


rareconnect screenJoin our safe and moderated international community for Apert syndrome on the RareConnect platform available in five languages.


front-medartBecome a member for free & read a growing range of expert research studies and articles about different aspects of the origin and medical care of people with Apert syndrome.


apertwebinar-picWatch our highly informative webinar hosted by RareConnect and featuring Dr Dee Gaines, of the Dr Dee show.
This is the first of what we hope will be a series of webinars.


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