What did you have for breakfast this morning? You’re not alone if you skipped it. After all, life is hectic. Perhaps you feel like you don’t have time for breakfast or you just don’t fancy eating first thing in the morning. Looking at my own life, I’m a warrior mother, … Continue reading
Apert syndrome is a very rare condition and as we do every year, Elijah’s Hope is supporting Rare Disease Day. This year the theme is Research. You can read more about the theme on the official Rare Disease Day website Rare Disease Day takes place on the last day of February … Continue reading
When Elijah was blue-lighted to Bristol Children’s Hospital on Monday 17th November 2014, I never imagined that he would still be an in-patient 12 months later. If I thought that November was a long month, 2015 felt at times, like a lifetime. It’s only now, almost a year on from … Continue reading
“It’s rude to stare.” I bet most children hear this at some point in their early years because, in most cultures, staring is seen as rude. To be on the receiving end can make you feel uncomfortable and exposed, so good manners dictate that we keep our glances short. Why … Continue reading
On Saturday 9th July, you will be forgiven for doing a double-take if you come across a merry band of superheroes running a hospital bed through the streets of Bristol. Don’t be alarmed – they’re just doing their bit to make the world a better place. Superheroes from Wonder Woman … Continue reading
Ahead of our conference, we’re finding out about another keynote speaker and workshop facilitator at Elijah’s First International Conference: The Living University of Postural Care. Bas Jansen is a postural care tutor-manager and seating specialist who will be looking at ‘Postural Care in Australia’ in his keynote speech and exploring … Continue reading
Elijah’s First International Conference: The Living University of Postural Care 26th & 27th November 2015 Making families equal partners in developing postural care services Listening to Families workshop – this gives you a flavour of what to expect: The Listening to Families workshop will be co-run by Pauline Toohey and … Continue reading
Life-saving techniques for body posture to be highlighted at first UK international postural care conference Leading experts to stress the vital importance of good postural care for people with disabilities at Bristol-based conference in April Date: Hilton hotel, Bristol, 23/24 April 2014 The UK’s first dedicated international conference on improving … Continue reading
Give voice to your deepest hopes and dreams with MiXiT! “Every great dream begins with a dreamer.” On Tuesday 21st and Wednesday 22nd April, inclusive theatre company, MiXiT, will be running an exciting two-day ‘Dreamer Workshop’, which will culminate in a live performance at the ‘It’s Showtime!’ party to celebrate … Continue reading
This is the second of the webinar series held in partnership with RareConnect. This webinar looks at coping with grief, depression and anxiety - the last taboo.
The death of a child is just about the worst thing that can happen to a parent. When the child has lost their battle with a disability and you have been involved in 24/7 in their care before that, how do other people relate to you over the loss? Have you felt like you've been expected to have a time-limit on your grief? How do you carry on?