Apert Webinar

As a founding member of the RareConnect Apert syndrome community, we are proud to be able to bring you educational or informative webinars surrounding the issues faced by families who have a member with Apert. View our latest webinars below


View the Apert webinar discussion on grief, loss & depression

This is the second of the webinar series held in partnership with RareConnect. This webinar looks at coping with grief, depression and anxiety - the last taboo.

The death of a child is just about the worst thing that can happen to a parent. When the child has lost their battle with a disability and you have been involved in 24/7 in their care before that, how do other people relate to you over the loss? Have you felt like you've been expected to have a time-limit on your grief? How do you carry on?

Our speakers, Tania Weissberg, Jeannie Ewing and Beth Coleman explore these issues in a frank and moving discussion. If you'd like to join RareConnect, click here for more information