Living with Apert Syndrome Series

A series of articles about living with Apert syndrome to help people understand the challenges and so that families who have children with Apert can read about how Kaddy has coped - and thrived - through adversity.


What every parent should know when giving birth to a child with Apert Syndrome

Here are a few tips that may help when your have a child with Apert from Tania Weissman. Make sure your child has been properly diagnosed, not only with Apert Syndrome but also with the variety of congenital malformations that can occur during gestation. Your baby will require follow up… Continue reading