Back in February, I sat in on a Zoom meeting for an organisation representing 800 carers of adults and children. The meeting was about emergency planning but what transpired was a series of emotional, heart wrenching stories from some of the attendees about the challenges carers are struggling with every… Continue reading
If you haven’t discovered Outlander yet (a historical/fantasy romance about a World War Two combat nurse, Claire, who accidentally falls back in time by 200 years to the Jacobite rising in Scotland and falls in love with Jamie, a young highlander), then cancel all your plans and get binge-watching! Seriously,… Continue reading
This week, I was looking in the mirror when I noticed that one of my eyes was twitching slightly, the eyeball itself making tiny, jerky movements. Is this normal for someone with Apert Syndrome, I thought, or just a sign that I am completely and utterly exhausted? This thought spurred… Continue reading
Did you know that, in Zimbabwe, women constitute 60% of the illiterate adult population? Although most girls who do attend school complete Grade 7 (around the age of 11 or 12), there’s a sharp drop in attendance from female students once they move into secondary education. Severe poverty, particularly in rural… Continue reading
Monday 8th March marks this year’s International Women’s Day for which the theme is Choose to Challenge. The day aims to celebrate women’s achievements, raise awareness about women’s equality, lobby for accelerated gender parity, and fundraise for female-focused charities. It seems to me that it’s fitting to talk about women’s equality and the… Continue reading
Sunday 28th February 2021 marks this year’s annual Rare Disease Day. With the strapline, “Rare is many. Rare is strong. Rare is proud”, I wanted to talk to you a bit about my own experience of living with a rare condition. As those of you who know me in person or… Continue reading
If, like me, you’ve fallen under the spell of Bridgerton’s Simon Basset, Duke of Hastings, during the latest lockdown, then I imagine one particular scene had you swooning like a Regency debutante. In this scene, Simon stands before Queen Charlotte, wife of King George III, and explains why he wishes… Continue reading
“It’s rude to stare.” I bet most children hear this at some point in their early years because, in most cultures, staring is seen as rude. To be on the receiving end can make you feel uncomfortable and exposed, so good manners dictate that we keep our glances short. Why… Continue reading
Dr. Dee discusses Apert syndrome and neuropsychology with parent advocate Tania Weissberg. Originally published online here. Continue reading
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