Apert syndrome and orthotics

Tania Weissman writes about the use of orthotics with a child who has Apert syndrome.

Children who have Apert Syndrome experience a variety of boney idiosyncrasies and their feet are a perfect example of that. In some children, the big toe may or may not be fused to the rest of the foot. Most commonly, a metatarsal head will grow at the bottom of their feet, forming a rounded ball that can cause pain or difficulty in walking.

My son did not go through the crawling phase and could not stand up by the time he should have hit that milestone, thus never developing his abdominal core. In order to help him stand up, his physical and occupational therapists developed exercises that would require him to use the abdominal core.


One of the key elements in this process was providing the child with contraptions that allowed for being upright physically and most definitely psychologically. As the foot grows, this bony protuberance can be addressed with surgery.

Depending on the bones’ growth plates and risks only an orthopedic surgeon can assess, orthotics inserts can be recommended in lieu of surgery. Orthotics are molded to the foot, after a gait study is done in order to measure pressure points in the foot. With those orthotic inserts, your child can go for long periods of time and by pass surgery, until it is absolutely necessary.

Written by Tania, leave her a comment here.

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