Children’s Mental Health Week: Supporting the mental health of children and young people with complex health problems and learning disabilities

Black child with father laughing

Monday 1st February to Sunday 7th February 2021 marks this year’s Children’s Mental Health Week, the theme of which is ‘Express yourself’. For most of us, the COVID pandemic and resulting lockdowns have brought the topic of mental health to the fore. Many people are struggling, and this includes our children. In… Continue reading

Children’s Hospice Week: Moments that matter at Charlton Farm

Children’s Hospice Week runs from 17th to 23rd June in 2019 (see #ChildrensHospiceWeek on social media). It represents a full seven days dedicated to raising awareness and funds for children’s hospices and organisations offering palliative care services to children and young people in the UK. Currently, 49,000 under 18s live with life limiting or life threatening conditions,… Continue reading

Being mum and my son’s care package manager: A delicate juggling act

Elijah and Kaddy

June 2017 saw Elijah spend another stint in Bristol Children’s Hospital. This time, he had three consecutive episodes of unconsciousness during the morning of Saturday 3rd June.  After the third episode, I called 111 and we were quickly taken to hospital by ambulance. For the previous three weeks, Elijah had… Continue reading

Breakfast is a must to help me care for my disabled son, Elijah

What did you have for breakfast

What did you have for breakfast this morning? You’re not alone if you skipped it. After all, life is hectic. Perhaps you feel like you don’t have time for breakfast or you just don’t fancy eating first thing in the morning. Looking at my own life, I’m a warrior mother,… Continue reading

Apert syndrome and Rare Disease Day 2017

Apert syndrome is a very rare condition and as we do every year, Elijah’s Hope is supporting Rare Disease Day. This year the theme is Research. You can read more about the theme on the official Rare Disease Day website Rare Disease Day takes place on the last day of February… Continue reading

A year in hospital: The journey to bring Elijah home

Elijah pictured with his tracheostomy

When Elijah was blue-lighted to Bristol Children’s Hospital on Monday 17th November 2014, I never imagined that he would still be an in-patient 12 months later. If I thought that November was a long month, 2015 felt at times, like a lifetime. It’s only now, almost a year on from… Continue reading

What are you staring at?

“It’s rude to stare.” I bet most children hear this at some point in their early years because, in most cultures, staring is seen as rude. To be on the receiving end can make you feel uncomfortable and exposed, so good manners dictate that we keep our glances short. Why… Continue reading

Elijah’s Hope bed run proves you don’t need superpowers to be a hero

On Saturday 9th July, you will be forgiven for doing a double-take if you come across a merry band of superheroes running a hospital bed through the streets of Bristol. Don’t be alarmed – they’re just doing their bit to make the world a better place. Superheroes from Wonder Woman… Continue reading

Postural Care in Australia: Postural Care Provision for Adults with Multiple Disabilities

conference brochure image

Ahead of our conference, we’re finding out about another keynote speaker and workshop facilitator at Elijah’s First International Conference: The Living University of Postural Care. Bas Jansen is a postural care tutor-manager and seating specialist who will be looking at ‘Postural Care in Australia’ in his keynote speech and exploring… Continue reading

Elijah’s First International Conference: The Living University of Postural Care 26th – 27th November 2015


Elijah’s First International Conference: The Living University of Postural Care 26th & 27th November 2015 Making families equal partners in developing postural care services Listening to Families workshop – this gives you a flavour of what to expect: The Listening to Families workshop will be co-run by Pauline Toohey and… Continue reading