Dr Dee Gaines, of the Dr Dee radio show, took part in a webinar hosted by RareConnect about aspects of Apert's syndrome with some affected patients and families. You can see the webinar recording below
Surgery and Apert Syndrome
Since surgery is the only option to address the fusions caused by the mutation and that my son was severely affected by the syndrome, I always followed the Doctor’s recommendations. 18 plus surgeries later, I don’t regret having used the best of what modern medicine had to offer. However, there… Continue reading
