Family support

Because Apert syndrome is such a rare condition, there are very few sources of patient support. At Elijah's Hope, we aim to provide you with Apert-specific sources of information about the condition and where you can find doctors who know more about it.

There are some Craniofacial support groups and charities in various parts of the world, however.




There are also a number of websites that feature people with Apert. We've listed a few below:


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