As a founding member of the RareConnect Apert syndrome community, we are proud to be able to bring you educational or informative webinars surrounding the issues faced by families who have a member with Apert. View our latest webinars below
This is the second of the webinar series held in partnership with RareConnect. This webinar looks at coping with grief, depression and anxiety - the last taboo.
The death of a child is just about the worst thing that can happen to a parent. When the child has lost their battle with a disability and you have been involved in 24/7 in their care before that, how do other people relate to you over the loss? Have you felt like you've been expected to have a time-limit on your grief? How do you carry on?
Our speakers, Tania Weissberg, Jeannie Ewing and Beth Coleman explore these issues in a frank and moving discussion. If you'd like to join RareConnect, click here for more information