Privacy Policy

Privacy Policy

At Elijah's Hope, we’re committed to protecting and respecting your privacy.

This Policy explains when and why we collect personal information about people who visit our website, how we use it, the conditions under which we may disclose it to others and how we keep it secure.

We may change this Policy from time to time so please check this page occasionally to ensure that you’re happy with any changes. By using our website, you’re agreeing to be bound by this Policy.

Any questions regarding this Policy and our privacy practices should be sent by email to [email protected], who is responsible for data protection for Elijahs Hope.

Who are we?

We are Elijah's Hope, a small community interest company that aims to raise global awareness of the rare condition, Apert syndrome and to help other children with all disabilities, primarily in the Bristol, UK area.

Our registered office is Elijah’s Hope CIC, Hollingdale Pooley, Bramford House, 23 Westfield Park, Clifton, BS6 6LT Tel: 0117 973 3377 Fax: 0117 973 3371.  Company No: 8661632. You can also use our Contact page to get in touch

How do we collect information from you?

We obtain information about you when you use our website, for example, when you contact us about our services, or to make a donation, or if you register for new post alerts, or register for membership so you can see the Apert information we have on the website. Our post alert service is securely run by Jetpack, by  Automattic whose privacy policy is here.

We also collect tracking information about your visit to our website such as IP address, duration of your visit, browser, location and pages visited using Google Analytics who provide web analytics for millions of websites and by Jetpack who also provide us with the facility to send you new post alerts, as above. This information is anonymous and does not identify you individually or collect any email addresses.

We use this data to see which are our most popular pages to help us improve the information we produce and your user experience.

What type of information is collected from you?

The personal information we collect might include your name, email address, IP address, and information regarding what pages are accessed and when. If you make a donation online or purchase a product from us, your card information is not held by us, it is collected by PayPal, our third party payment processors, who specialise in the secure online capture and processing of credit/debit card transactions, as explained below.

How is your information used?

We may use your information to:

  • process a donation that you have made;
  • seek your views or comments on the services we provide;
  • notify you of changes to our services;
  • send you communications telling you about a new post on our site

We will hold your name, as provided, and email address on our systems for as long as is necessary for the relevant activity, or as long as you subscribe to the site. You can unsubscribe at any time from the post alert emails we occasionally send you.

Your account data is used only for the purposes of operating our website and providing services to you. It may also be part of information automatically processed while maintaining the security of the site. This includes database backups and website security scanning. 

Who can access your information?

We will never sell, rent or share your information with any third party for their marketing purposes. If you make a donation, we do not have access to any credit card or payment information as this is handled securely by PayPal. Any information you share with PayPal via an account or transaction with them is covered by their own Privacy Policy.

We may transfer your personal information to a third party as part of a sale of some or all of our business and assets to any third party or as part of any business restructuring or reorganisation, or if we’re under a duty to disclose or share your personal data in order to comply with any legal obligation or to enforce or apply our terms of use or to protect the rights, property or safety of our supporters and customers. However, we will take steps with the aim of ensuring that your privacy rights continue to be protected.

Your rights & choices

You have a choice about whether or not you wish to receive information from us. If you do not want to receive new post alerts then you can safely unsubscribe from the unsubscribe link in the email that you receive.

We will not contact you for marketing purposes by email, phone or text message unless you have given your prior consent.

The accuracy of your information is important to us. If you change email address, or any of the other information we hold is inaccurate or out of date, please email us at: [email protected]

You have the right to ask for a copy of the information Elijahs Hope holds about you. We may charge £10 for information requests to cover our costs in providing you with details of the information we hold about you. You must first supply evidence of your identity such as a photocopy of your passport certified by a solicitor or bank plus an original copy of a utility bill showing your current address so we know you are who you say you are. However, we may withhold personal information that you request to the extent permitted by law.

Security precautions to protect the loss, misuse or alteration of your information

When you give us personal information, we take steps to ensure that it’s treated securely. Your email address is held securely by our email alert processor, Jetpack and we use up-to-date security software to protect our website.

Email addresses, when we send post alerts, are transmitted normally over the Internet, and this can never be guaranteed to be 100% secure. As a result, while we strive to protect your personal information, we cannot guarantee the security of any information you transmit to us, and you do so at your own risk. Once we receive your information, we make our best effort to ensure its security on our systems. Where we have given (or where you have chosen) a password which enables you to access certain parts of our websites, you are responsible for keeping this password confidential. We ask you to ensure your password is secure and you do not to share your password with anyone.

Use of 'cookies'

Like many other websites, the Elijahs Hope website uses cookies. 'Cookies' are small pieces of information sent by an organisation to your computer and stored on your hard drive to allow that website to recognise you when you visit. They collect statistical data about your browsing actions and patterns and do not identify you as an individual. It is possible to switch off cookies by setting your browser preferences. For more information on how to switch off cookies on your computer, visit our full cookies policy. Turning cookies of may result in a loss of functionality when using our website.

Links to other websites

Our website may contain external links to other websites run by other organisations. Our privacy policy applies only to our website‚ so please read the policies on the other websites you visit if you are concerned. Other websites' practices are not our responsibility, although we do strive to only link to reputable sites that offer useful information.

In addition, if you arrived at our website from another site, we cannot be responsible for the privacy policies and practices of the owners and operators of that third party site and recommend that you check their own policy.

16 or Under

If you are aged under 16 years, please ask your parent/guardian's permission before you provide us with personal information.

Information transferred outside of Europe

As part of the services offered to you through this website, the information which you provide to us may be transferred to countries outside the European Union (“EU”). By way of example, this may happen if any of our servers are from time to time located in a country outside of the EU. These countries may not have similar data protection laws to the UK. By submitting your personal data, you’re agreeing to this transfer, storing or processing. If we transfer your information outside of the EU in this way, we will take steps to ensure that appropriate security measures are taken with the aim of ensuring that your privacy rights continue to be protected as outlined in this Policy.

If you use our services while you are outside the EU, your information may be transferred outside the EU in order to provide you with those services.


Review of this Policy

We keep this Policy under regular review. This Policy was last updated in December 2017.

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